Tuesday, July 14, 2020

Corona Daily 390: Data Slower than the Disease


Yesterday’s New York Times has a report that sounds fictional, but is not. Set in the USA, year 2020, the report narrates the various ways in which test data is transmitted and processed.

Across America, coronavirus test results arrive at the public health departments by phone, email, post (!), and more commonly, fax. Fax complies with the American privacy standards for health information. The Austin city office receives 1000 faxes every day, many of them duplicate. Some are sent to the wrong address. If sent through a server to a computer, the health department prints the report for someone to manually enter it in a database later.

Fax machines are so overwhelmed, they frequently run out of paper. Office floors are overrun with paper. Washington State called 25 members of the National Guard (a military unit) to enter data manually.

Nationally, 80% of the results are missing demographic information, and half don’t have addresses. The Trump administration has stated that laboratories should report patients’ age, race, and ethnicity, but the rules will come into force only August onwards. Laboratories should also furnish patients’ address and phone number, but this is optional.

When reports come in duplicate, on the fax pages on the floor, the department employees, if physically present, pick the pages up. Most records come only with the patient’s name and birth date. With the address and phone missing, employees start calling the provider or going through directories.

The doctors, labs, and health authorities have different systems; they don’t talk to one another. (Like one Apple charger not fitting another Apple device.) Information is expected to move from the doctor to the lab to the public health authority and back to the doctor. It doesn’t always. Errors are possible when dealing with blurry printouts and analog data.

Many health offices get the necessary information about a test result 11 days after the test. By which time the patient has managed to infect hundreds. Health officials are advising people to assume they are positive, since the faxing system makes the process nearly as long as quarantine itself.

The report has a beautiful quote from a Health department director. “The data is moving slower than the disease.”
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In a 2017 interview, Barack Obama admitted this to be the biggest failure of Obamacare. His administration had desperately tried to get doctors to move from paper to digital, but couldn’t. $27 billion were pumped in to improve the medical system buried under mountains of paperwork. A special HITECH act was passed in 2009. Many American hospitals have some sort of electronic medical system in place, but they can’t transfer the data to another hospital outside their system. In countries like the UK or Canada, a patient has a unique ID number, which makes aggregating data easier. In the mid-1990s, the USA congress passed laws preventing the federal government from creating new ID numbers.
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UK’s National Health Service (NHS) was, until two years ago, the world’s largest buyer of fax machines. By the end of 2018, with more than 11,000 machines in use, the health secretary said he was ashamed of this backwardness. By sheer chance, NHS was ordered to get rid of all fax correspondence and go digital by 31 March 2020. In India, I don’t recall seeing a fax machine in the last ten years.
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Before a national rollout of 5G, the USA may be better off getting rid of their fax machines.

Ravi


2 comments:

  1. Yes when we last in a hospital in A&E (not too serious), a nurse stood behind the doctor taking notes on paper. We then saw the Doctor entering this into a computer!!

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  2. I had seen a working fax machine in maybe 2007

    ReplyDelete